Waiting for diagnosis

I have just joined this group. Just over 2 years ago I had a polypectomy (removal of polyp) following months of constant bleeding (I had been on low dose HRT but had stopped several months prior).

I had a follow-up scan prior to which I had been told if I didn’t hear anything then everything was fine. Last week I saw my GP because of night sweats. Night after night I would be woken 8 or 9 times and it was getting me down. Whilst there I mentioned I was having some pain in my left abdomen and that I had a large hard swelling. I could only describe it as it felt like a pregnant uterus.

He examined me and referred me urgently for scan. He also did a ca125 blood test which has come back raised. I have my scan tomorrow then presumably will see gynaecologist. I am presuming that I will probably need a hysterectomy. Just wondered if anyone has had a similar experience?


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  1. I had raised CA125 levels too but got the all clear. My consultant said that it was probably due to my endometriosis. I also had several ovarian cysts. I’ve now had an abdominal hysterectomy including removal of my ovaries and feeling much better.

    Good luck and hope all goes well with whatever treatment you need xx

  2. combined HRT didn’t agree with me so had to stop, am now back to night sweats, constant waking, left sided very low sharp pain before and after period so practically most of the time! as well as the usual period cramps that seem to alst ever longer as i age. Am currently waiting for a date for hysterectomy with removal of both ovaries as have had dermoid cyst in past. Consultant says probable adenomyosis. Good luck

  3. I had a similar experience this time last year – lump in abdomen and raised ca125 – turned out to be an ovarian cyst the size of a grapefruit – and at operation for total hysterectomy ovaries and all – it was found to be totally benign despite fears raised by elevated ca125. I am now totally fine ! So fingers crossed for you too. Hugs xx

  4. Your doctor seems to be bang on the money. I assume you know the blood test is ovarian cancer? As stages progress so so fast it goes un noticed. It is not always a professionals fault.
    If I went about every cramp or most women. Doctors wouldn’t bother. Yours ruled it out seems to me right on mark.
    I hope all goes well. I’m not a health professional. I think you know options you have to make. Good luck xxx